(105) Modern Heroes

All who tackle difficult situations, or a life-threatening illness. Sometimes it works, sometimes it doesn’t… but they keep going!

This time the blog is devoted to modern heroes. It’s about all those who fight to turn the tide of the situations they’re in … or fight the serious or life-threatening illness they have. It is a battle of perseverance. Sometimes it works … sometimes it doesn’t … But despite all the setbacks, they keep going. They are incredibly beautiful and especially powerful people who are a shining example for all of us! Yes, they are certainly heroes!

Heroes … others sometimes call them stars. You don’t notice them! You don’t hear them! And yet you come across them every day.

What follows is not a fairy tale, it’s a harsh reality

As an example, there was the daughter who asked her mother if she could give her the name of a modern hero for her school project and also explain why he is a hero. It was not a question that the mother could answer immediately. The mother asked me if I could help her and in a whim I had an answer for her.

The mother was divorced and had to take care of her children on her own. The alimony was not really regularly paid to her by the father. Well, there you are. What now?

In order to survive, the mother decided to start her own business with a service that suited her. For that it was necessary to follow a few courses. She had to … in her opinion … and she managed it with a lot of perseverance.

Just when the company started running, the mother became ill. The diagnosis she eventually received was that she had cancer. It was a form that was treatable and benigne … but still … there was the fear.

The answer to her question was that every time the mother looked in the mirror … that in my opinion she looked at a hero. Despite all the difficulties, all the grief and the fear if things would be fine … she had managed to start a business so that she could take care of herself and her children … and that she had recovered from her illness, although it was still vaguely present in the background. That makes her in my eyes … a hero! Easy to say afterwards … but you need to realize that the mother had to go this long path all by herself.

Around us there are many more heroes like her

You meet heroes every day. These are people who are seriously ill and, above all, who don’t want to show that to others … don’t want to talk to others about it … not wanting to burden others with their grief. If only for avoiding sympathy, or to prevent others from consciously or unconsciously avoiding them … because those others are scared or don’t know how to cope with it themselves.

All these heroes … as if they have a short fuse … quickly notice whether the interest of the other person is meant … is real! They quickly see throuh all kinds of stories that make no sense.

These heroes also avoid conversations where other people say what they have been through, is it not with themselves then with somebody else but worse … many times worse. Sometimes it even goes so far that in their opinion our hero exaggerated. Whatever you think of this… it’s never a competition!

Many people consciously or unconsciously avoid our heroes. Maybe it’s because the other person’s illness is scary … and one wants nothing to do with it … or one comes into contact with a side of life that one is afraid of … a side of life where maybe death plays a role … a side where very different norms and values are important than success, beauty and status.

A personal opnion… or yet it isn’t

Personally, I think it is sad that people avoid these heroes. That way they miss the opportunity to meet … incredibly beautiful and above all powerful people … people who are a shining example to all of us!

For that reason alone I am eternally grateful to my daughter Anne Birgit for putting me on the path of the Mourn & Grief Foundation. Yes, forever … because no matter how much energy, pleasure and gratitude I have received from my clients and teams in my former professional life, that is almost nullified by the attention and gratitude I receive from our heroes.

To all these heroes … Chapeau!

(104) There are those moments in your life

There are those moments in your life, even after many years, that you’re back at that time … that time you had so much grief and pain … grief, because you lost a loved one … hurt, because you were seriously ill … that you thought that you were healed and it turned out that you have cancer again … or …

You have such moments when processing your grief … even though that may have been years ago. At moments like that you jump back into your grief again … you may cry just as intensely as then … it might hurt just as much as then. That is allowed, even though it may be after years, there is nothing wrong with that!

People around you … even dear ones such as family and friends … may not understand anything anymore of what is happening to you at that moment. When you are asked what is going on … and you just can’t find the words to describe how you feel at that moment … yes, then that’s OK too.

Maybe it helps when you don’t know the words … as an answer to their question … that you play this music by Lili Haydn – The Last Serenade. Tears and understanding come naturally. Maybe they understand … or maybe they feel … what’s going on with you. And maybe not. Only if you understand the emotions you feel!

Bereavement may take quite a while. That is very normal. After all, everyone mourns in their own way.

But mind you, it should not be that you linger in your grief. The raw mourning of the past must have changed into the gentle pain of the sorrow and the missing of people today. Because if the raw pain of the past … now, after years, still is present … then it would be good to seek help. Then indicate that it is about processing your grief! Many people assume that you have processed your grief by now. After years, not everyone immediately makes the connection that you are still dealing with (delayed) mourning.

(103) She felt herself more and more abandoned

As if it should have been the case. Somewhere, on the way, during a coffee break, I got into conversation with Kathy, a fictitious name. The blog is about her and her partner John, also a fictitious name, who struggle with Kathy’s disease.

The story of Kathy

Kathy has breastcancer and its treatment is drastic and have the necessary effects on and in her body and on the image of her body. The consequences are not only physical, but also emotional and that is also perceived by her.

The changing body image and the emotional perception can be seen as a mourning reaction… at that which was… and now is. And that applies not only to Kathy but also to John.  It is important to note that both Kathy’s and John’s bereavement and the way they deal with it is different.

Now, while Kathy is recovering slowly step by step, John has fled in his work. And at the same time Kathy is only now beginning to realize what she feels … what has happened to her … and … how should she continue with her life. Right now, Kathy feels more and more abandoned by John.

Without having spoken to John

Yes, what follows are assumptions, but could it be the case that John has all kinds of feelings deep inside him… he doesn’t know how to phrase… or maybe even… doesn’t want to put into words.

It could also just be the case that while Kathy underwent the treatments and interventions, John only could be there for Kathy and only could give his support. He understood that her body was performing “top-sport” all the time and still does, while Kathy was physically too tired to be able to do much, or maybe even something at home. In that period was primarily the crisis manager in the house; worried about how her healing process was proceeding… worried about how the children and the family were dealing with her illness… arranged the house keeping… worried how his company or employer dealt with his absence. Has John even been able to take enough time for himself to realize what the consequences of Kathy’s illness could be?

And maybe it could be that John is scared … afraid because he does not know how to deal with her illness and its consequences … and how to proceed with Kathy … together … or …

Communication

John and Kathy must talk to each other and keep on talking. Yes, it’s clear to me, but it doesn’t have to be that it’s clear to John and Kathy.

In my opinion, it is necessary for Kathy and John to sit around the table together, and each one tells the story about … what is being felt … or missed … what the worries are … maybe is even afraid of.

In my opinion, it would be useful to do this together with a supervisor, so that in addition to helping to put everyone’s feelings into words, he or she can also cultivate understanding that both Kathy and John go through a grieving process in their own way. It does not matter how you go through that grieving process and how long it takes … what matters is that mourning process is run through!

(102) The Waiting Room

It was quiet in the waiting room of the Outstation Clinique for Radiotherapy. Despite the soft talk between the people sitting there, the silence was almost serene. You started to unwind. For some people is was necessary considering the therapies they came for.

Some were withdrawn and had something like… yes, I must do it… it is what it is… I have cancer… I must see if it can be cured… I’ll go for it and see how far I come. Others flipped through magazine pages or were absorbed in the messages on their phone. Occasionally, there were small groups who didn’t know how to act, talking loudly amongst themselves while the patient they accompanied was quietly sitting there… was not involved in the conversation at all… as if he was simply not present. But the serene atmosphere in the waiting room ultimately resulted in starting everyone to unwind.

It was not always easy to see the difference between the patients and the ones who accompanied them. But sometimes it was crystal clear who the patient was … when you looked into his or her eyes, it just seemed… whether that other person was looking at a different world… a breath-taking, beautiful world where harmony and true love are central themes. At such a moment it was as if my world literally came to a standstill… as if I was again looking into the eyes of my daughter… in the days before her death. As soon as I became aware again of my surroundings, I could see in the other person’s eyes that we understood each other… and in one way or another… were also connected to each other.

The atmosphere in the waiting room changed… it became restless. Two women came in… busy talking to each other. The one withdrawn, silent and inner-directed. The other restless and somewhat agitated. It was almost impossible not to listen to their conversation.

The conversation was about the fact that the patient did find it very enjoyable and was very grateful to the other person to bring her to this Clinique every day, the patient wanted to do something as a token of appreciation. But even though the other person did it with love without expecting anything in return, the patient felt kind of uncomfortable.

I could sympathize with them, because I also accompanied someone and occasionally, we discussed the same topic.

In the meantime, I believe that it should be celebrated that people are willing to help each other without expecting a compensation. And it should also be celebrated that a (seriously) ill patient is willing to accept the help of another… because that too is difficult for the patient (sometimes) to accept.

Personally, I am also of the opinion that such moments should not be celebrated because the patient is still alive! No, in my view, everyone, whether he is healthy or ill, must celebrate each day and get everything out of life what is humanly possible.

But the best thing I still think is that with me the impression arose, from several conversations, that in difficult situations you get help from people of whom you wouldn’t have expected this in the first place.

So, you see, it turns out, there are many angels among us.

(101) As if it should have been the case

On 3 December 2018 the Mourn & Grief Foundation (the Foundation) celebrated its fifth anniversary. Yes, 5 years already, time flies.

The Mourn & Grief Foundation is one of the results of the fulfillment of the last wish of my daughter Anne Birgit, when she died in 2000 at the age of 21 years young. She wanted me to use my experience to help people to deal with their grief. The moment, when I promised her to realize her wish, I can still remember clearly, as if it had happened yesterday. But at the time I had no idea what it would mean for me personally. Let alone that I had an idea of how I could make the turnaround from managing complex multidisciplinary projects to helping people with bereavement, but I rarely shy away from challenges. A once made promise is “sacred to me”, especially when it concerns the fulfillment of your daughter’s last wish.

Just before her death in 2011, Mary-Anne, my wife, insisted on realizing our daughter’s last wish.

It lasted until 2013 though, before I had the guts to start fulfilling my promise. In retrospect, that long period was necessary. In that period I was allowed to manage complex international projects with a sometimes impossible high workload. The employees came from all over the world, with different backgrounds, languages, cultures and different interpretations of words, opinions and concepts. The same was true for the customers for whom we worked. After the death of Mary-Anne, in the years that followed, I was increasingly longer and further away from home. It seemed like I was fleeing in my work. It was not only fleeing, it was also a challenge. During that period I mainly managed people in the most diverse situations … it was also the period I was able to create my golden teams. As if it should have been the case … that period turned out to be a preparation for the last wish of my daughter Anne Birgit, the experience gained was how to deal with the most diverse people.

In the summer of 2013 I finally started writing about my grief and my bereavement. It was also the time I happened to see articles of Gijsbert van Es about bereavement in the Dutch national news paper NRC. The central theme of Gijsbert’s articles was how 10 to 15 years later people dealt with their loss of a loved one. In the run-up to the interview at the end of 2013, ideas also emerged about how I could fulfill the promise to my daughter. The result was that in December 2013 the Mourn & Grief Foundation was established and an interview by Gijsbert in the NRC was published about how I dealt with my grief 13 years after the death of my daughter and how I wanted to realize her last wish. As if it should have been the case … at that moment pieces of the puzzle fell into place.

In 2013 the starting point for the Foundation was described in 2013 as:

“The personal loss that people have can hardly be imagined other than by those who have experienced this earlier and are willing to share the lessons they have learned,  and to show that there is indeed a light at the end of the tunnel.”

A few years later I found that the light at the end of the tunnel is not important, but the light that is in yourself. That light in yourself is important, however, and it will always bring you to safety.

In the summer of 2017 I noticed that I had arrived at a point where I could actually say that I had let go my deceased loved ones and that they could continue on their path in the universe where they were at the time. I can no longer feel their presence, but in one way or another I realize that we always stay connected. At the same time, my feeling also clearly indicated that although my bereavement  was over, but that in my opinion this would never be completed. There are still times when I think back to Anne Birgit and Mary-Anne, my sadness then feels like a soft pain.

What I also discovered that summer was that I skipped unnecessary hassle, nonsense conversations or nonsense discussions. It felt like I had to compress a completely new life on that part of my life’s path on which I walked then. It also became clear to me that using all the lessons I had learned, I could definitely continue with a life of joy, opportunity and, above all, new challenges.

Now, in December 2018, my experience and the image of that summer in 2017 have only been strengthened. Almost every day I am amazed by the new opportunities and possibilities that I encounter on my life’s path. As if it should have been the case … personnaly, it is a confirmation that the Foundation’s approach has worked for me … and at the same time it is a confirmation to me that I am working on the correct things.

In retrospect, yes easily said when most is done … in retrospect, I have become stronger … and during the processing of grief it is not just about grief … but also about love, joy and happiness.