(100) Moments that determine the course of your life

It might happen to you

Moments that determine the course of your life’s path.

Those moments just after the birth of your child or just during a conversation

Whatever the reason, the paediatrician is of the opinion after collegial consultation that your new-born child does not have long to live and gives advice not to send birth cards to family and friends. How do you cope with this as brand-new parents?

Dad, why do I always have to take those pills and need to check at the hospital every time? How do you explain to your eight-year-old daughter that this is necessary to keep her body in good condition because her life expectancy is so short? How does your daughter deal with the fact that she has not been granted a long life in this world?

Those moments where dying is eminent

We have found bone cancer that is at an advanced stage. We expect you may have another 3 months. What goes through you when you get such a message? How do you deal with this? How do you explain that to your partner and your family? How does your partner cope with such a message… and your family?

Dad, do you want to help me, I’m so tired… no matter how much I want to stay with you, I do not have the energy anymore. How do you answer your daughter’s question of 21 years young who has given everything she possibly could give and has arrived at point on her life’s path where she really can’t go any further? And how do you help her while you yourself… are deeply hurt and grieving because you can feel and see that she is deteriorating fast and will die soon.

Those moments where you get a serious warning

You are dreaming a few times in a row that if you do not go to the doctor you’ll die soon. How do you deal with such dreams? Do you just ignore the dream as pertinent crap… or are you going to see the doctor?

You consult a specialist … and at the end of the consult you are told that it would be a good idea to prepare for the worst. How do you deal with the fact that the risk of unwanted side effects or that you may even die during surgery, are highly probable?

And then the questions keep coming

And then the questions keep arriving… there seems to be no end of these. Questions you don’t know the answers to. Questions where you have no idea how to act upon.

How do you deal with the fact that your life suddenly seems to be so much shorter than you thought it would be? How do you go about the fact that your life suddenly took a very different direction than you expected? You still want to do so much in your life, but your body simply can’t anymore. How does your family cope with this? And your friends, how do they deal with it? How do you support each other? Do you get support? Who supports who?

So, who supports each other? And how?

You just can’t offer support

When I think of my loved ones, I am there for them when they run into emotional issues with which their life suddenly seems so much more complicated? Does that mean I will be there for them spontaneously? On the contrary, they need to ask for support. They should have the need that I’m there for them. It also means that, as a positive answer to their request, I need to take up my commitment to the full 100%. After all, they should’ve the confidence that whatever happens, I’m there… always!

Not everyone understands what it means to offer help

People who offer their help with the best intentions often have no idea what it does mean for them; how they can help and above all continue to give support and what it takes of (emotional) energy to everyone. Energy the other one may have less, and less … and less … and less.

If you’re willing to be there for the other person, you should be able to establish empathy and you should be able to understand what that other person is experiencing, what the other feels. That’s easily said but certainly not easily done when you’ve never experienced what the other is going through now… certainly when you’re each other’s partner. It’s demanding when your partner is dying. Much is asked of you which you should be able to offer… to keep on offering… independent on how hard that may be. You must keep going for the full 100%… with all your heart.

You should be able to discuss tough topics with each other

You should be able to discuss issues about life and death, when the other wants to do so. Issues like is there a god and if so, who is that, is there a heaven and a hell, is there life after death…  issues you can perceive from different points of view depending on your faith and culture. What is important in any case is that you should not reject the other because he or she thinks or feels differently than you do. After all, that’s personal for everyone!

Don’t act inhuman

As an outsider you may not respond lightly to the situation (e.g. that it isn’t too bad, I you know how you are feeling, my aunt had a similar disease… much worse then you though…). Something that is very certain, is that you, as an outsider, have not the slightest idea what the other person is struggling with, what the other person is feeling and how much pain or sadness that can give him or her. In short, when the other person says that he or she is in pain, is afraid, or doesn’t know what to do … then it that’s the case!

Don’t be cruel

Don’t be cruel to the other when you don’t accept, are not willing to accept or even deny that the other is seriously ill when the other says so. It’s not always the case that you can see on the outside that someone is serious ill. When the other indicates that he or she is seriously ill, he or she apparently wants to talk about it with you. That does not always mean that you want to do so too… maybe you do not know how to deal with it… or just because you’re afraid to talk about it. That isn’t necessarily bad, but in order to be honest with the other… and with yourself… tell why you do not discuss this at that moment. In that case you create clarity.

Of course, you can make fun together

Of course, you can laugh, make jokes together, make each other happy so you can create and collect a diamond. A diamond means for me a moment of happiness, of warmth, of joy, of love, of friendship. When I can create or collect a diamond during the day, I consider that day a great day.

Answers are not always available

Not all questions can be answered… so don’t make up answers… be honest to each other. That’s not always easy though, because you may get the feeling that you let the other down… but that’s not the case… your honesty and being there for other sits at a much higher plan than not being able to answer the question.

In matters of life and death, self-interest may look around the corner

The person who is dying may finds it difficult enough for him or herself. His or her opinion or faith that there may be life after death plays a major role in this. Faith and cultural backgrounds are important factors in our daily life and can be even the driving force for wars. But at that moment, the moment you are sitting with the dying person, your faith and your cultural background are not relevant… those of dying one are!

Just like the person who is dying, the loved ones who are remaining have difficult times! It is my opinion that these dear ones, if they don’t do so already, should put aside their own interests about the dying person. Don’t come up with comments like he or she should make all the effort and should try to recover… to be healthy again. Why would you ask such a thing? Because you can’t live without the other? All options were already examined by the dying because he or she knew somehow that he or she was going to die.

Give (eventually) the dying permission to go Home. Personally, I experienced what it means for the dying when you give permission to leave… permission to go Home. I will never forget the moment I saw my daughter with a radiant smile on her face when she died.

Finally

I can add many more points to above list, but it’s in my opinion that the following points are the most important ones:

If you’re willing to be there for the other person, you should be able to establish empathy and you should be able to understand what that other person is experiencing, what the other feels. That’s far from simple, in particularly when you’ve never experienced what the other is going through at that moment.

That is even more applicable when you are each other’s partner. Especially when one you are the one that stays. You have not asked for it, but you as a partner are asked to fulfill your vow to the other… “Until death follows.” You must be able to do that… determined… however demanding that is. You must keep going with… with your courage high… for the full 100%. And as a partner you do that anyway… that’s quite ordinary, isn’t it?

Whatever happens in your life, there are always forces that help you further. It may not be the way you want to, but they will help you with whatever puzzles you encounter on your life’s path. You shouldn’t be afraid to ask though!

(97) How Easy Can It Be

Lately it seems like I am meeting more and more Angels on Earth. Angels that show you… how simple it all can be… is granted to be… is. How beautiful the world is… how beautiful you, yourself, are… and… the people around you. How with a few words your world can tip… from rain to sunshine… from gloom to joy… from in and in grief to moments where you can forget that grief. How with simple insights… veils are removed one by one… making everything crystal clear… lighter… serene… happier… and you can in and in enjoy life again.

Those moments I consider the diamonds in my life.

My sincerest thanks to all the Angels around me… I love you!

(94) It’s Time to Change Course

What I have learned in the recent years while writing these blogs for the Mourn & Grief Foundation is … that at the beginning of my journey on the path of mourning I absolutely could not see and could not realize what it would take and what I would experience… a journey with moments in which I no longer knew what I should to do in order to get back on track in my life… moments in which I would rather prefer to die and to go Home, to be able to see my great love again and to hold her in my arms again… and yet … and yet, during those same moments there was always something that, or someone who motivated or, stimulated me in some way to go on… and moments when I really could not go any further in my life and everything seemed against me, my guardian angels made me feel that if I asked them for help, I would receive help in some way.

In retrospect, when I looked back during those years so now and then, I was always amazed what I had achieved in the meantime. I never noticed that during the day-to-day affairs. However, when looking back over a period of several months I could clearly see this. It provided me also with the extra strength to continue my life’s path.

In retrospect, I should’ve asked for help with processing my grief sooner than later. Apparently, it must have been the case not to do so, because the path of life on which I find myself now feels very good to me. It is what it is!

It’s time to change course because the processing of grief means to go on in life. Usually going on means to go on in a different way than you used to do so before. To go on with those things that are important to you in your life. Despite that huge loss. Despite that raw pain. To go on with your life… you must!

Realize that the closer you were to the dear one you’ve lost and, realize that the more you have loved her or him, the rawer and the deeper your grief of the loss will be. On the one hand that hurts you a lot and the other hand it is a huge compliment to the dear one you’ve lost and… it also is an indication how deep the love to each other was… or… still is.

But by going on, on your life’s path you also set your first steps in processing your grief. By going on you also begin to look ahead again, although you may or may not realize your destination yet. Hence, yes, it’s time to change course.

Yes, for me too it’s time to change course. Somehow, I feel I’ve fulfilled my daughter’s last wish I promised to carry out. Lately, it became more like a personal need to do this kind of work

As for the Foundation’s website it is also time to change course. A plan is being developed to add a discussion forum to the website for you to use later this year. It is obvious that the forum will be placed in a secure environment. I would like to receive any suggestion you have for the structure or content of the forum. You can contact me via this link.

(93) Awareness

Our life had to be the way it was!

After completing my previous blog [A Broken Heart] I was left with a vague feeling. A feeling I couldn’t really touch. That feeling was emphasized by my question at the end of that blog:

“What if we would have been able to process our grief, under guidance or supervision… would my soulmate then still be alive?”

It took a while until I got an answer to that question.

The sooner you are aware of your grief, the sooner you will be able to process it and… in my opinion, the less are the possible consequences. Whether you want to process your grief is a choice… that choice is entirely up to you.

It was only after the death of Anne Birgit, our daughter, that we realized we had to do something with the grief we had suppressed those 21 years our daughter lived. Suppressed… because we both constantly were in a survival mode.

Suppressing grief all those years became a second nature for us. It became a habit… yes… a habit! In the end, unprocessed grief will consume you from the inside. It starts with those undefinable ailments… ailments of which no one can find the cause… to even, as happened to me, two open-heart operations right behind each other… or even worse when my wife died of broken heart. These were signals from the body that something was off and that I needed to arrange my life differently… or even drastically. During the years that our daughter lived we weren’t aware that we needed to process our grief… and after her death we couldn’t… or didn’t know how to… a missed opportunity.

But… how do you become aware of your grief?

You could listen to the family, friends and the people around you. But, you may not want their view at those times.

You could keep a journal in which you summarize every 3 or 6 months what you’ve experienced in the past period… how you’ve felt and how you’ve dealt with it. When you’ve done this several times you may discover a trend on how you feel at that moment in relation to the beginning of your grief or loss. If your loss at that moment feels just as intense as in the beginning… that may be an indication it is time to seek help… seek help on how you could deal with that loss.

At this moment I’m quite sure that if we had kept such a journal, every 3 or 6 months, right from the birth of Anne Birgit, we would’ve become aware at an early stage of our daughter’s life that we needed to process our grief (all the time) one way or the other with or without help or guidance. Our life would’ve been very differently indeed.

Our life had to be the way it was!

(92) A Broken Heart

What if we would have been able to process our grief, under guidance or supervision… would my soulmate then still be alive? A question I probably will never get answers to.

On a warm afternoon in October 1978, our daughter Anne Birgit was born in a hospital. We rejoiced that our long expected first child was born.

Our happiness was short lived however. That same evening the surgeon contacted me and asked if I could come over to the hospital immediately. The meconium, the first excrement of a newborn child, was stuck and there was also a first indication that our daughter might have Cystic Fibrosis. Mary-Anne, my partner, wasn’t informed yet and the surgeon asked us if the three of us could discuss the various options… and then decide how we would proceed from there. Time was of the essence. There you are, being parents for the first time of your life… thrown into the deep.

That same evening, our newborn daughter, hardly 8 hours old, had her first operation in her life.

It was also the first time in my life that my world was completely destroyed. Even today, over 40 years after Anne Birgit’s birth, I can still see the images with my mind’s eye how a beautiful future was shattered in one blow! Not only mine world was shattered, Mary-Anne’s too. I can still see the fear in her eyes… I can still hear her crying from the depth of her soul… searching for words. That evening changed both of us forever.

While our daughter was being operated we took an impulsive oath to each other… that, whatever would happen during our lives… we would always stay together and face whatever was thrown to us in the future… we would always be there for each other. At that moment it felt it was important so that a higher power would allow Anne Birgit to live. One way or the other, that oath to each other gave us peacefulness… gave us an unfamiliar energy… no… power to continue. That power was really needed because at that time we hardly couldn’t imagine what was in store for us… how we later had to struggle in guiding our daughter… and that we would get the privilege to bring Anne Birgit to the Light.

Not many people can imagine what we had to live through those 21 years during the life of our daughter. How high the stress levels were and how lonely we were. Anne Birgit became a beautiful young woman who knew very early in her life that she had not many years to live.  Early in her life she made conscious choices and, she tried to get everything out of her life that was humanly possible. Buy because she would have a short life and because she was good looking… at the outside… we met frequently people who couldn’t or didn’t want to accept her illness. It didn’t make sense in our eyes, but we had to deal with it one way or the other. As if our daughter’s illness wasn’t bad enough, the misunderstanding from others did a great job on top of it.

Looking back, that oath we took to each other during the operation of our 8 hours old daughter… that oath kept us together during our 35 years of marriage. Just now, I realize that the energy and the power we received stands for True Love. It guided us through our darkest and lightest periods of our relation. What I also realize is that from all the problems we had to solve, I’ve learned that whatever happens in your life… and it doesn’t even matter how bad it is… you always get support somehow from the spiritual world… eventually, you always get your feet firmly on the ground. It doesn’t happen by itself though… you have to work very hard to make it happen… and you’ve to devote over 100% of your effort all the time… always!

Life was for Anne Birgit one long rollercoaster ride. Just as unusual life was for her… just as unusual was the period around her death for us… and just as unusual was our bereavement… that is, how it felt for me.

It is said that parents who lose a child are marked for life. That’s true for Mary-Anne and myself, nonetheless different. Isn’t it often said that the loss of a child is not even something you whish to have for your worst enemy? Yes, we agreed with that too… but… on the other hand, the stress levels we had to deal with during the life of our daughter… the angst and the worry that was always there… after her death… that angst and worry… was gone! We didn’t have to survive anymore. Our house became hushed… very silent! And step by step… we got rest in our system… and at the same time… the realization sunk in that our daughter wasn’t there anymore.

With that rest also came unrest again… but this time from a completely different order… the unease to cope with our loss and grief somehow. During Anne Birgit’s life we always had hidden our pain and grief. We had hidden it so deep that we were unable to find and touch it after her death. We understood we had to do something about it… but what, and how… and whom to approach? The family was there too and began to demand attention with as result that nothing came of our mourning… and again… we deeply buried our grief. Yes, burying our grief, we were very good at that… unfortunately.

Slowly but surely our grief began to seep through the cracks from the deepest of our being. And in the period that followed we often went through emotionally deep valleys… and at the same time also over emotionally high peaks because we were together and although we had a deceased daughter we have a healthy son. Too bizarre for words… at the same time to go through emotionally deep valleys and over emotionally high peaks. The result was that our family and the people around us couldn’t see… or didn’t understand… that we went through severe times… so severe that in the end something broke. Mary-Anne, my partner and soulmate, died in 2011 of a broken heart.

Was it so intended or… what if we would have been able to process our grief, under guidance or supervision… would my soulmate then still be alive? A question I’ll probably never get an answer to.